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    I have learned several new and important pieces of information from Can Do MS's webinars. It is the type of information that you don't even know to ask about. So I wouldn't have asked my doctor about it. I am especially pleased to find out about neuroplasticity and pre-cooling and post-cooling as related to exercise. Thank you for your efforts on behalf of MS patients like myself.

    Lollie, Webinar Attendee

    by Rosalind Kalb, Ph.D., Can Do MS Programs Consultant

    When one person is diagnosed with MS, many other people are involved and affected. And the changes brought about by MS can have an impact on those important relationships.

    Healthy relationships depend on good communication, mutual respect, trust, and a shared concern for one another’s welfare. MS can challenge even the closest of relationships in a variety of ways:
    • MS isn’t easy for people to understand or talk about.
    • It may require a shifting of roles and responsibilities.
    • The unpredictability of the disease makes it harder for people to know what they can count on from each other.
    • MS strains resources, including finances, time, energy, and emotions.

    Effective communication is the key to managing these changes and challenges, and the first step to establishing meaningful communication is to deal with potential obstacles.

    • Invisible symptoms. Most MS symptoms aren’t clearly visible. Even the most loving spouse or caring friend can’t read another person’s mind, so the person with MS needs to know how to ask for help when it’s needed, and politely decline  when it’s not. Family members, friends, and colleagues need to remember that what they see on the outside may be very different than what the person with MS is experiencing on the inside.

    • No time – no place. Effective communication takes time and focus, and setting aside the time for important, distraction-free conversations is essential.
    • Different communication styles. It’s important to respecting each other’s communication styles and find comfortable ways to broach even the most sensitive topics.

    • Mood and cognition issues. Mood changes caused by MS can make conversations difficult, as can the problems with attention, memory, and information processing that can occur. Addressing these problems with the healthcare team can have a positive impact on your communication

    People communicate in many ways – by talking, touching, e-mailing, texting, and so on. Body language is also a form of communication. However one is communicating, the goal is to convey messages clearly, respect the feelings of the other person, invite (rather than discourage) a response, and allow time/space for a response.

    Tips for Talking

    -Make time for talking
    -Acknowledge differences in coping/communication styles
    -Use “I” statements
    -Give the other person time to think and respond
    -Think before you speak

    -Over generalize
    -Drip with sarcasm
    -Engage in magical thinking—no one can read your mind

    Tips for Listening
    -Listen actively and confirm what you’ve heard
    -Pay attention to your body language (eye-rolling, smirking, finger-jabbing, doing something else at the same time)
    -Say “ouch” as a short-hand signal

    -Interrupt or finish the other person’s sentence
    -Jump to conclusions

    Remember that silence is easily misinterpreted as not caring.


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    PO Box 5860 Avon, CO 81620 Phone: 970-926-1290 or 800-367-3101 Fax: 970-926-1295 Email:
    MS Coalition Charity Navigator Consortium of Multiple Sclerosis Centers Independent Charities of America Humane Charity

    Can Do Multiple Sclerosis™ is a 501 (c)(3) nonprofit organization.
    Charitable Organization Number: 74-2337853

    Formerly The Heuga Center for Multiple Sclerosis | Founded by Jimmie Heuga

    A national nonprofit organization, Can Do MS is a leading provider of innovative lifestyle empowerment programs
    that empower people with MS and their support partners to transform and improve their quality of life.

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